Tuesday, May 29, 2012
Watching a slow motion train wreck....
That is what everything with my Middles feels like.
Today I took Middles to our endocrinologist. They drew 6 vials of blood to run a full diabetes panel. They also had him do a glucose tolerance test and checked his A1C. It will be a week before I know all the blood work results.
According to Middles A1C of 4.3 and his glucose tolerance test (109 fasting start, 170 at 1 hour mark, 130 at 2 hour mark) he does not have diabetes.
However - with the half dozen blood sugar results that were 200+ postprandial (that's 2 hours after a meal) in the 72 hours prior to visit; combined with frequent urination, increased thirst, stomach aches, chest pain, headaches, leg soreness (not associated with physical activity), positive results for all the antibodies associated with Type 1 and the fact that his 2 siblings already have Type 1 - the Endo believes diabetes is coming. It may be a month, a year, ten years - etc. but it is coming.
My hope - to get Middles into a study (there is one in the San Francisco area) that focuses on slowing if not stopping diabetes in people that are at high risk. Maybe I can divert the train.
As for right now - his numbers today and most of yesterday were all within normal range. Even after eating a personal pan pizza from Pizza Hut (they are addictive and should come with a surgeon generals warning) his blood sugar never went above 142 (we were running late for soccer and they all begged me - don't judge).
The Endo instructed me to continue to check his blood sugar 2 hours after meals and get a fasting blood sugar each morning. It made me sad to see him "excited" to have his own meter complete with a new style of lancing device Delica - which I tried and am pleased to say it is way less painful than the older model.
I will continue to discourage High Glycemic Index foods high glycemic index foods (sorry no cupcake for you). Again - I want to say that I am normally a "let them eat cake" kinda Dmom but I want to reduce the chances of blood sugar spikes allowing his pancreas to keep plugging along - no need to add stress to an organ that is clearly having a hard time keeping up. The improved diet will likely improve the D control my other two have as well. I have always believed and advocated that people with type 1 diabetes can eat everything people without diabetes can eat BUT that doesn't mean any of us should be eating some of the crud we put in our bodies (stay the heck away form my Reese's - they have protein in them).
Thank you everyone for your support during this crazy time for our family. I truly appreciate all the emails, tweets and comments. Thank you God for allowing me to be wrong this time - even if it's temporarily wrong - if it is coming please let it wait till after the move, after puberty, after college - is there ever an OK time - doubtful.
For now we keep plugging along - I think we can, I think we can, I think we can.....